She didn't go to school today.
Her little sister was sick and her daddy had to go to work early this morning. So instead of waking up the sick baby, I called my mother and asked if she would stop by and give her a ride to school.
My mother pulled up at 8:19 am- 4 minutes after the last bell at school rang, announcing tardiness. By the time Mom walked in our front door, my daughter was sobbing.
Being late, even 5 seconds late, causes her to panic.
I could have made her go to school anyway, which is what I am sure everyone reading this is thinking that I should have done.
She wouldn't have been able to breath by the time she had gotten to class if I had done that. She would have spent the first half of the day crying and jumping and jerking, and her teacher would have called me by lunch time.
So I just kept her home.
She counted her jumps, snapped her legs, and walked around the house for about 30 minutes or so, and then she was calm again.
Tomorrow she is seeing a pediatric TS specialist for the first time. It will be quite a change from her neurologist. I am not looking forward to the initial visit, re-explaining every symptom, watching as they observe her and ask her questions... But I am looking forward to talking to someone whose main focus is on her disorder.
I pray that this specialist can help her. I know that TS can not be cured, but it can be treated. She needs this doctor to understand what she goes through every day. She needs help with her tics, her panic attacks, and her night terrors.... And I need help, too. I need to know how I can help her.
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